By Kristen Weiss Sanders, as told to Barbara Brody
I've had many surgeries over the years, so my intestines are much shorter than they should be. For a while I had a J-pouch, which collects waste in an internal reservoir so you can still have bowel movements normally. But I eventually needed to get an ostomy. It’s an opening in your abdominal wall that a small piece of intestine, called a stoma, passes through. I nicknamed my stoma Roo, as in kangaroo, because it empties into an external ostomy pouch.
I get my daily oral medications packaged by the pharmacy into"morning" and"evening" packets, and I use an app to remind me to take them. These drugs help with inflammation, ease nausea, and prevent migraines that I've had since I was a child. I also infuse a biologic drug, vedolizumab , into my port every 8 weeks.
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