A six-year-old was born with such a rare disease that it has been named after him.was born blind, deaf, missing a third of his skull, with a hole in his heart and with severe facial, spinal and cranial deformities.
Doctors discovered he was the only person in the world to be born with his collection of ailments, and so his condition has been named after him – as Grayson’s Syndrome. Fighting for his life, Grayson was transferred from the small hospital in Georgia where he was born to a bigger hospital in Alabama.‘Of course, I was still in love with him but we were very scared. His eyes were swollen, he was very small and he had a huge bulge on his head.
He has a curve in his spine, meaning his internal organs are being crushed, he can’t walk, and he has difficulty breathing.Doctors predicted he’d never ever make it past three or four years old, but now he is six.The surgery to close the hole in his skull saw surgeons make him a new one using parts of his ribs.
Best of luck to the chap. I’m sure the people that matter in his life cherish his soul.
We all pray for our children to be born fit and healthy and pray when they are, the heartbreak of being told your son is so unique they name the syndrome after him, is something we could never imagine. But your love, courage and determination is instilled in him, truly unique
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