One in 10 Who Menstruate Suffer from Endometriosis. Why Do We Know So Little about It?

Noémie Elhadad, an associate professor at Columbia University, remembers feeling like she had to be extremely private about her disease because it was directly tied to her period. “I would concoct crazy stories to explain why I had fainted in the subway in front of my friends when the obvious answer was ‘I faint from pain sometimes,’” she says.

“Too often in the past, people have thought that multiple problems are going on,” explains Hugh Taylor, a professor of obstetrics, gynecology and reproductive sciences at the Yale School of Medicine. “They have one problem. Let’s fix it.” In 2016 she and her Ph.D. students at Columbia launched a research project called Citizen Endo and an app called Phendo designed to phenotype, or characterize, endometriosis. Currently, more than 15,000 users in several dozen countries use the app to track their symptoms and pain management techniques. Elhadad has also partnered with the period tracking app Clue to compare endometriosis with a healthy menstrual cycle.

Laurie Beth Koller, an endometriosis patient in New York City, suffered with the disease for 10 years before she was diagnosed. She has had two surgeries, tried multiple medicines and birth controls, and now works with a pain specialist because of chronic nerve pain. She thinks of the disease as a particular state of being alone. “I think we as women don’t talk about what our bodies are going through,” Koller says. “And I think endometriosis is a prime example of that.

You don’t talk about science either, just empty woken gibberish!

womenshealth

Comparative diet tracking need not be all that expensive. Evidently, the incidence of endometriosis among women who follow the macrobiotic diet is close to zero. So, why is that?

Also because it affects women, whose health care needs have always been second to those of men.

This. Not taught in schools and a major human event that affects half the population and is swept under the rug.

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