‘Left behind’: For those with weakened immune systems, vaccines have not provided same freedoms

of Covid vaccines in certain immunocompromised individuals, finding that they were at risk for severe disease.

“Worldwide, nobody’s ever gone through this, let alone in our rare disease community. It’s challenging all around,” she said. But some immunocompromised people have found that by taking such precautions themselves, they stand out. “This brought to light what is possible, whether it be work from home, or taking classes online,” Stallone said, adding that she hoped these accommodations would be extended past the pandemic. “Even the special hours stores did — my doctor wrote a note for me allowing me to shop with seniors because I’m immunocompromised.”

Support networks can be key, others said. While not everyone in her life gets what she is going through, Williams has found comfort in an online sickle cell support group. Before the pandemic, the group used to meet at a local hospital every month, but now gets together weekly over Zoom — which has meant it attracts members from as far away as Africa and London.

Although she had to give up her job doing outreach to homeless people, she has taken a volunteer position serving outdoor meals to people in need. While she cannot partake in indoor gatherings, she does outdoor visits in masks with her great-nieces and great-nephews who are too young to get vaccinated.

Must be a point in there somewhere.

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