5 Things People With Hidradenitis Suppurativa Wish They’d Known Earlier

. Sometimes, these bumps break open and release pus and fluids, which requires learning to care for your wounds.

Although there is no cure for hidradenitis suppurativa, you can manage your condition with medication and proper care. To help you figure out which strategies may work for you, we spoke to five people with hidradenitis suppurativa about what they wish they had known about the condition earlier. Hopefully, their stories can provide reassurance and guidance if you have hidradenitis suppurativa and are still learning how to best manage your condition.

. “I didn’t understand just how much hidradenitis suppurativa would affect me mentally,” Tom tells SELF. “Where I live it’s very hot a lot of the time, but I’m so ashamed of the scars and active lesions that it makes dressing really difficult. Everyone else will be in tank tops and I’ll be in long sleeve T-shirts to hide the bandages.”Many people we spoke with said finding others who understand the challenges associated with hidradenitis suppurativa provided a huge amount of comfort.

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