Terry Williams and his wife Claire have applied to change parts of their home to make it more accessible
The Motor Neurone Disease Association has called for commitments to increase funding to help those get support and be able to adapt homes quickly.Terry Williams, from Penygroes, Gwynedd, has motor neurone disease which is fast progressing.His wife, Claire Yardley Williams has applied to change parts of their home to make it more accessible but she said the process had been hard and frustrating, with the pandemic making it tougher.
The charity has called on the Welsh Government and political parties to implement the current Neurological Conditions Delivery Plan for Wales, improve healthcare for people with MND, deliver accessible homes and support unpaid family carers."Things happen too slowly," said Sian Guest, policy and public affairs manager at the MND Association.
A Welsh Government spokesman said: "Local authorities have statutory duties to provide eligible disabled people with a disabled facilities grant.
poor people they should never have to wait ,Government should stop spending on illegals staying in our hotels and the money used to help these and other people
My step mother had MND. I have to say the council /government were really good with her. They spent over £15,000 adjusting the house for her, it's not a council house, so we were all surprised they spent the money on it. She had hoists, custom wheelchair and a lift installed.
DFG funding has increased to over 500mill last year to improve accessibility of peoples homes. Problem is, it's not ring-fenced so councils are using the extra money to plug holes in other places that their austerity measures have depleted. It's there to be used.
It's about time councils recognise that people with MND haven't got the time to wait !!
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