Girl’s ‘miracle’ survival of football tumour

At just 11 months old, Ellie was intubated and in critical care.“It wasn’t until one of the senior nurses came up to us and said she’d seen cases where kids had pulled through, to be strong and keep it together. I’m glad I listened because she did pull through.”Ellie Caterjian had a nasal gastric tube for feeding.Prior to that, Mrs Caterjian had taken her daughter to her doctor 11 times in six weeks.“She had lost 1.2kg. They thought it was because she’d changed formula.

It wasn’t until the end of the month that she was diagnosed with infantile fibro sarcoma in her abdominal cavity. The cancer is usually found on the limbs. Ellie was fitted with a tracheostomy to breathe and tried one week of chemotherapy but the cancer got bigger.That was until doctors enrolled Ellie in theLed by Children’s Cancer Institute and Kids Cancer Centre at Sydney Children’s Hospital, Randwick, children are given a personalised medicine program with treatment tailored to their particular cancer.Ellie was put on a drug called Larotrectinib which was to attack the particular mutation causing her cancer.

“They couldn't believe how quickly the tumour had shrunk in size. By late September she could roll in her cot and sleep on the side she could never sleep on.”Her parents wanted to see of their daughter could talk now she had made progress.“I could see her mouthing words and Rob actually said, ‘I think she’s trying to say something’,” Mrs Caterjian said.

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