The family of a six-month-old boy have learnt their son has a rare syndrome that means he has a 100 per cent chance of one devastating thing happening.
Louis’ father and brother Charles, 2, drove four hours to Perth to be with Louis and his mum as the family waited four days for an operation to remove the tumour. A final diagnosis confirmed Louis had Li-Fraumeni Syndrome, a rare mutation of the cancer suppressing gene TP53.
Source: Healthcare Press (healthcarepress.net)
Western Australia Rare Syndrome Nine-Hour Operation Final Diagnosis WA Palliative Care Oceania Fights Rare Syndrome Louis The Brave Boy Finds Perth Children's Hospital Choroid Plexus Carcinoma Young Children Young Boy Charles Cancer Returns Australia And New Zealand Li-Fraumeni Syndrome Perth Brain Tumour Mega Chemotherapy Nedlands 15 Hospital Ave Nedlands WA 6009 Australia Boy Fights Justine Boylen Geraldton Hospital AU Stem Cell Rescue Brain Tumour Australia Emma Kirk Cancer
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