There is little information or data available but Xu said pharmaceutical companies have shown little interest as the treatment"does not have commercial value and its user group is small."
The company's chief scientist Bruce Lahn described it as"a rare disease among rare diseases" and said they were inspired after learning about Xu's family.Xu has even been contacted by other parents whose children have been diagnosed with Menkes, asking him to make treatment for their relatives too -- something he has refused.
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