Gauteng miracle baby survives after being born with rare internal defect

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Ignus Greyling may be Gauteng’s, if not SA’s, first baby born with his organs compressing his lungs to have survived against enormous odds.

The infant is finally home after two months of treatment by a team of paediatric and neonatal specialists and nurses“The first cry of your newborn baby is the most beautiful sound ever. My husband and I nodded at each other. We had no idea of what was waiting for us,” said Greyling.

Almost immediately after Ignus was born, the treating paediatrician in theatre found he was not breathing as he should. Not only has he survived, but all indications are that he is physically well and neurologically sound. This is an absolute miracle.“The pressures in his lungs were exceptionally high, a condition known as pulmonary hypertension, and all life and respiratory support measures had failed.

Paediatric ICU nurses Khanyi Ngobese and Palesa Mabuya adjusted quickly to the NICU’s processes and support structure, while caring for Ignus around the clock. “I think the NICU nurses found ECMO a bit overwhelming at first as they had no previous experience with the process, but I was so proud of how they embraced it.”It is quite different in real life when you see that little baby connected to that big machine.“It is quite different in real life when you see that little baby connected to that big machine. I learnt so much, and with this experience I won’t feel so daunted next time we have a neonate requiring ECMO in our unit.

“We had been quite concerned about Ignus in the first week or two, however his condition stabilised on ECMO sufficiently for the procedure to go ahead.

 

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