The committee, made up of ethicists, policy makers and lawyers, said in the reports that the use of gene editing had evolved dramatically since they set out in December 2018 to develop a governing framework and that recent successes in altering the DNA of people with lethal diseases had opened up ethical challenges.
The reports described several scenarios that the proposed strategies might help prevent, including conducting gene-editing trials in low-income countries to develop therapies that would ultimately be too costly for all but the wealthiest ones to buy; unscrupulous clinics offering unsafe or ineffective gene-editing services to people desperate to overcome potentially life-threatening conditions; and the use of gene editing for enhancing traits such as athletic ability.
“We want people to look at what is happening now and what we need to do to shape the way the research will proceed,” said committee member Françoise Baylis, a professor at Dalhousie University in Halifax, Canada, and an expert on the ethics of human gene editing.
wow
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