published this week by Penguin Random House Canada, Calgary mom and author Ashley Bristowe paints an unflinching portrait of the divide between what children like her son Alexander require to thrive and what the government is willing to invest in caring for special-needs kids.a rare genetic disorder. Kids with Kleefstra Syndrome exhibit
Everybody’s great. Alexander is walking, talking, reading, swimming, being amazing, able to carry on an amazing conversation now. He’s delayed, but has blown past even the most ambitious milestones I could have hoped for when he was diagnosed. The people who are taken out of society, we are the acceptable loss. My contributions to society over the last 11 years are the acceptable loss in order to keep AlexanderThe fight that we took on to give Alexander every opportunity to thrive, changed my entire world. I lost my career. Our household lost half our income. All I did was fight for this kid.Way less. As people grow up and age, that strategic development of the brain has to be capitalized on at the moment it’s growing.
Yes, it’s called The Institutes, and it’s a centre for brain-injured children that has been operating since 1955. The founder was a physiotherapist, had fought in World War II, came home, and started working trying to prevent seizures in brain-injured adults. They gradually moved their work toward kids.
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