The High Price of Living With Chronic Pain

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Three women open up about how their conditions impact their bodies—and their wallets.

got her rheumatoid arthritis diagnosis when she was only 18 years old. Because she was still on her parents’ health insurance plan, she was able to get the help she needed without worrying too much about finances. But once she hit 25, she was on her own. “I was doing temp work and didn’t get health insurance through an employer,” she says. “And because of my preexisting condition, I could only find a coinsurance plan.

“I had to constantly decide if I was going to get the medication or treatment that I needed. [I knew if I] put it all on my credit card, I wouldn’t be able to pay it at the end of the month,” she says. “And after I turned 25, my [new] insurance didn’t even cover things like physical therapy, which I need.” It wasn’t until the Affordable Care Act passed in 2010 that Angela’s finances started improving.and, in 2016, qualified for Medicaid when it was expanded.

It’s easy to see how she maxes out the $2,750 she puts into her flexible spending account every year, but Adina doesn’t focus too much on the amount she spends. “This is all just something I know I have to do for myself,” she says. “I’m so used to it now and have learned how to work it into my budget—it feels like second nature to have these kinds of expenses.

Recently, it’s occurred to Leslie that almost all of her money goes to her medical bills. “I’ve done basically no travel for fun since my diagnosis—I’ve only traveled for work or for a health conference where my expenses were covered,” she says. “And I’ve limited socializing to help save money for the bills I know are coming.”For Leslie, chronic pain has also impacted her career choices—something that has affected what she earns now.

 

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