Suicide hotline shares data with for-profit spinoff, raising ethical questions - POLITICO

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'Why sell t-shirts when you can sell the thing your organization does best?” How data from a top suicide hotline, Crisis Text Line, ends up with a for-profit company that uses insights gleaned from people's darkest moments.

last year, comes from the insights “drawn from analyzing nearly 200 million messages” at Crisis Text Line. would go toward supporting the nonprofit, calling the arrangement “a blueprint for ways for-profit companies can infuse social good into their culture and operations, and for nonprofits to prosper.

Reierson said the organization terminated him in August after he began raising concerns internally about its handling of data. Rodriguez, the Crisis Text Line general counsel, disputed this, saying Reierson “was dismissed from the volunteer community because he violated Code of Conduct.” Despite repeated requests, Rodriguez declined to specify what the alleged violations were.

Beck Bamberger, a current volunteer in California who has logged nearly 300 hours during her three years with the hotline, said she was not aware that data from those conversations was being used for customer service applications until POLITICO reached out for this story. One is the issue of whether the data being shared is truly anonymous, despite Rodriguez’s assurance that “[s]haring personally identifiable information is strictly forbidden under the contracts between Crisis Text Line and Loris.”

If that were to happen with the Crisis Text Line’s data, “your name could be associated with a suicide hotline,” he said, noting how disclosures about a person’s HIV status in the 1980s, or involvement with Planned Parenthood today, could put a person at risk. “It's a lot different than someone just understanding your cholesterol,” Perakslis said.

She added: “It probably passes legal muster, but does it pass the 'feel-good' muster? A lot less certain."falls into a gap in the federal government’s approach to data privacy.

 

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“These are people at their worst moments. Using that data to help other people is one thing, but commercializing it just seems like a real ethical line for a nonprofit to cross.” AUPOSC

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