“It’s still the same treatment that Neil Armstrong’s daughter got in the 1960’s. That is the exact same treatment plan that our daughter got in 2021, which means nothing. It’s a fatal, fatal tumor,” Madeline said.
Violet passed away from DIPG three and a half months later, but her parents are still fighting for other families. They are launching the“Funding is always an issue for pediatric brain tumors, especially if its rare,” Dr. Plant-Fox said. In addition to research, the Napletons are also launching the foundation to help other families at Lurie’s Children's Hospital who are going through the same ordeal.
“For us, as horrible as it was, but we didn’t have to worry about paying rent or paying for food, but there are real examples of families at Lurie right now of families that are in that exact situation,” Steve said.“Really having financial support in the terms of next month’s rent so they don’t have to think about it in the context of fighting for their children’s life is super important,” Dr. Plant-Fox said.“It’s probably something I wasn’t ready for, but it doesn’t matter.
Source: Healthcare Press (healthcarepress.net)
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