Regina woman with rare Locked In Syndrome fundraising for medical study in U.S.

Johnson had a rare brain stem stroke in 2005 which left her with LIS — sufferers are fully conscious and aware, all of their senses work but their muscles don’t.

“This is a research study. Its purpose is not to improve my life but to possibly help others like me in the future, I’m a guinea pig,” she said. “Some family members think it’s too risky . It lets me feel like I’m contributing to society.”In a previous trial, the implant helped a stroke sufferer speak for the first time in 20 years by projecting his thoughts onto a screen.

After surviving her stroke, Johnson said she felt she was given another chance to spend time with her family and her two children. Now that they’re both adults she felt it was time to try and get involved in a study.Article content Over the six years, Johnson will travel back and forth between Regina and the U.S., with her husband or a caregiver staying with her in America. She said her children are ready to be on their own but it will be hard for her to leave her parents.

Source: Healthcare Press (healthcarepress.net)

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