Patient Denied Prescription Refill Due to COVID-19 Thanked for Her 'Sacrifice'

A Los Angeles woman with lupus was denied a refill of her hydroxychloroquine prescription because her health care provider was “preserving” the medication for people “critically ill with COVID-19.” She was then thanked for her “sacrifice” and “understanding.”

Q: "Is there evidence to suggest that [hydroxychloroquine] might be used as a prophylactic against COVID-19?" Hydroxychloroquine does build up a level in the system that stays in the body for an average of 40 days even after the last dose is taken. If you do run out of medication and feel your condition is significantly worsening, please contact your doctor to discuss alternative treatments.“Thank you for the sacrifice you will be making for the sake of those that are critically ill; your sacrifice may actually save lives,” the note told Dale.

Hydroxychloroquine or chloroquine are the only methods of preventing inflammation and disease activity that can lead to pain, disability, organ damage, and other serious illness. An increase in lupus-related disease activity not only significantly impairs the health and quality of life of people with lupus but will also place further strain on health care providers and systems in a time of crisis.

Other chronic illness patients have reported difficulties getting their prescriptions for hydroxychloroquine filled in the last week as well. Mighty community member Megan C. shared she had to reach out to several pharmacies to get her hydroxychloroquine prescription refilled.

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