Beichler said her son Taylor, who is 20 months old, and his younger brother Jax, who is 5 months, both have a condition called classical phenylketonuria, or PKU, a rare “genetic inborn error of metabolism.” They can’t process a certain amino acid, so it builds up in the brain.
The baby formula shortage is a big deal for 5-month-old Jax Beichler, left, and his 20-month-old brother, Taylor Beichler. Both boys have the same rare condition.The specialized formula helps Taylor and Jax grow and develop without cognitive, behavioral and mood problems. Jax still uses a formula for infants, while Taylor relies on a different formula he started when he turned 1.
“It really affects mood and behavior and things along those lines because it happens in the front part of your brain,” Beichler said. “It’s hard to distinguish between a 1 1/2-year-old tantrum or, ‘Do I have too much protein in my system?’” Taylor Beichler, far left, and Jax Beichler, center, both rely on a special formula as treatment for their PKU. They are pictured here with their older brother, Carson, far right.She said problems can occur “within a matter of days” of being off the formula. That’s why Taylor and Jax must stick to a prescribed low-protein diet, which includes the formula.
“They are on a very low spectrum of foods that they can eat,” Beichler explained. “The formula is medically necessary.”
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