Making Breast Cancer Care More Inclusive

have come from studies of white women of European descent.

“I don’t experience the screening recommendations in the same way that white women do,” says Yvette Gullatt, chief diversity officer for the University of California system. “I experience breast cancer in Black women as highly aggressive and lethal. I’ve had white colleagues who were diagnosed with breast cancer and go to radiation in the morning, and are back at work by 10 a.m.; they never miss a day.

Esserman and her team are working closely with community advocates to increase awareness and education about clinical trials among Black women, who already have a deep mistrust of the medical system given notorious episodes of medical exploitation, including the Tuskeegee and Henrietta Lacks experiences. In those cases, Black patients were used in research studies without being fully informed of their participation or the potential risks of participating.

Rickie Fairley, a former marketing executive and breast cancer survivor, is working to improve education among Black women about the need to participate in trials like WISDOM. She has mobilized other women to serve as a clearinghouse for those who aren’t as familiar with the facts about breast cancer risk among Black women or about research and clinical trials.

As part of WISDOM’s recruitment, Esserman has also reached out to the VA health system in the U.S. to include female veterans whosemay be related to not just hereditary factors but environmental exposures during their service. Lisa Edwards, a veteran who was discharged from the Army in 1989, says the study is an opportunity to raise awareness and resources for women’s health in the VA system in general. “As female veterans, we faced chemicals and exposure just as the men did,” she says.

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