"If I can get through that really terrible time," Zabona-Lees said."And ask for help and take the help from everybody from family to friends to doctors nurses, people on the street... if I can, you can."That is, until something started slowing her down, not long after her mother passed away."I couldn't hold my infant granddaughter up the stairs without holding on," Zabona-Lees said.She couldn't explain why, which frustrated her.
Zabona-Lees' son and two daughters went to work for her, seeking answers as they watched their mother's muscles waste away. She could not ever lift her arms above her head; she couldn't even lift her head. She was in pain, physically and emotionally. She says it hurts to even give or receive a hug.Finally, in 2019, doctors at IU Health pinpointed the condition affecting Zabona-Lees.
"It's a problem in the brain and spinal cord that leads to symptoms of back pain, stiffness and tightness in the back, spasms in the back, tightness and stiffness in the limbs, especially the legs," Pascuzi said. As Zabona-Lees manages her condition, she has become focused on raising awareness about her illness, especially after singing sensation Celine Dion had the courage to share on social media she is also battling"Stiff Person Syndrome."Celine Dion's announcement resonated with her.
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