‘Chronic Lyme’ Patients Are Getting Left Behind, but Long COVID Research Is Sparking New Hope

“If I took my dog on a 20-minute walk, I was in bed for the rest of the day,” she says. “Forget about going to the gym, despite the fact that I had been an athlete growing up.”, confusion. “I couldn't remember my friends' names,” Adams says. “My best friend would say to me, ‘where do you want to go to dinner?’ And I had to have her repeat that to me five times before I understood the context of the question.

Too often, these patients are getting left behind by the health care system. People with very real but hard-to-diagnose post-Lyme symptoms often end up seeing doctors who are “operating outside of insurance and outside of many of our established standards of care,” says Tal. For many folks who suspect they have lingering Lyme symptoms, “this is the only option,” she adds. “We have these big cracks in the medical system, and people are falling through.

“Although adequate studies have not been done in people, if you speak to a vet about whether or not tick pathogens persist, they will tell you absolutely. Yes. All the time they see it,” Putrino says.. You only need the second test if the first test is positive or inconclusive. But this process isn’t perfect, and false positives and negatives are known to happen, the CDC notes.

For five years, Adams took supplements and cycled through antibiotics. “I was feeling better, but I was still sick, and I had the symptoms to prove it,” she says. Antibiotics, of course, slaughter both bad and good bacteria, leading to side effects .

As tick-borne diseases continue to spread to new parts of the country, scientists have also made progress on a number ofTal’s group at MIT is researching immune markers to predict who will develop chronic symptoms after a Lyme infection . They hope this will help improve the design of future clinical trials for chronic Lyme treatments and help people access these treatments earlier in their illness, before symptoms become severe.

Source: Healthcare Press (healthcarepress.net)

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