Celine Dion Says Singing With Stiff Person Syndrome Feels Like ‘Somebody Is Strangling You’

on Friday morning , the first broadcast interview the singer has done since revealing her diagnosis in 2022. “It’s like somebody is pushing your larynx/pharynx this way . “It was like talking like that, and you cannot go high or lower. It gets into a spasm.”In fact, Dion, 56, said, the spasms caused by the disorder can get so intense that they have caused painful physical injuries. “I have broken ribs at one point because sometimes when it’s very severe it can break some ribs as well,” she said.

In addition to affecting her voice, Dion said the muscle spasms and stiffness associated with Stiff Person Syndrome can migrate to other parts of her body, including her spine, feet and abdomen. “It feels like if I point my feet, they will stay in a , or if I cook — because I love to cook — my fingers, my hands, will get in a position. It’s cramping but it’s in a position like you cannot unlock them.

Dion told Kotb that she first began having difficulty controlling her voice after noticing symptoms in 2008, saying that initially she thought things would be “fine.” But when the muscle spasms and stiffness in her hands and feet became more prominent she realized something serious was happening with the disease that is chronic and progressive, but which can be managed with medication. “She’s on the fight of her life right now,” Kotb said in Friday morning’s preview.

The full interview will air as a primetime one-hour special on NBC on Tuesday at 10 p.m. ET. Watch the preview of Kotb’s Dion sit-down below.Watch Kelly Clarkson Go Down in a ‘Blaze of Glory’ as She Botches the Lyrics in Front of Bon Jovi. We use vendors that may also process your information to help provide our services. // This site is protected by reCAPTCHA Enterprise and the Google

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