A new drug costs $2.1 million for children with a muscle-wasting disease

Novartis said it will price the one-time drug,The FDA approved Zolgensma for children under the age of two with spinal muscular atrophy, a rare inherited disease caused by a mutation in the survival motor neuron gene. This defect can disrupt production of a protein and cause muscle-controlling motor neurons to die.

Acting FDA Commissioner Ned Sharpless described the approval as a"milestone in the transformational power of gene and cell therapies" that have the potential to treat a range of diseases. and medical technology. It will also confront private and government insurers with challenge of covering the costs of what is poised to become the nation's most expensive drug.

Will my online pharmacy fill 3 months at a time only?

How much in kickbacks does the FDA get?

This is so wrong!

I don’t know about that. My sister is on a drug that costs over $700,000 a year and she has been on it over 2 years and no end in site.....

Either....parents pay, insurance pay or government pay..... Either way big pharma gets the business... ?...?

Abdul Rashid Hashmi Qureshi 03154671429

Boy I’m glad realDonaldTrump is got the costs of medication down. Thank god.

It's probably only $6 in Australia & Canada... Big Pharma in The United States is a serious problem.

GOP loves this. They profit off this exact scenario.

Costs a lot to bring a drug to market & u said it was rare so few will use it so of course it’ll be expensive! Lucky they develop drugs for rare diseases.

invitae

F’ing ridiculous! Profit over lives.

So, we can't have abortions because it's a sin to kill the unborn. But its ok to let deathly ill babies die lingering deaths because parents can't afford the outrageous prices of drugs.

US_FDA Leaks of CORRUPTION can tell the world a ton... ALREADY WON THE WAR long before the battle begins... Can only read through so much each day. so far its not looking good for the FDA TheJusticeDept or the FBI With the financial corruption data thats on its way out

Disgusting

Come on man...this is a no brained...help the kids.

And let me guess insurance won’t cover it.

Most pharm companies do donate, work with insurance, and often offer based on humanitarian need. I think drugs are way over priced, I work in healthcare, but fair is fair.

creating drugs for small market costs billions it's a catch 22 situation

🤦🏽‍♀️

How do these monsters sleep at night? Awful and disgraceful..

Bravo Usa

Disgusting. Throw them in jail.

Lock them up!!!

Of course. It's a new drug that they know people need for the babies and they will pay whatever. Prob takes $100 or less to make it

That's how US_FDA instead of finding cures, they create drugs to slow heal, slowly taking you to the cleaners..

Wow, that’s pathetic. They get away with it because they have purchased Congress already, big Pharmaceutical is the main opponent of legalizing marijuana.

Insane

Fluck BigPharma!!!

This is something everybody could be fighting against together.

Just like republicans... claim to be pro-life but kills children...

will the pro-lifers start a grant to pay for these poor babies 🤷🏾‍♂️🤷🏾‍♂️🤷🏾‍♂️🤷🏾‍♂️

Of you don't pay up, the kids die? WTF kind of blackmail is this? NoToNovartis ShutDownNovartis

Ain't capitalism wonderful? No, I don't want a revolution and set up some new system, but I want those who take advantage of our system to maliciously harm vulnerable people to be punished for their crimes.

Why would someone charge that much money knowing it could help children with this disease? It’s like holding them hostage. No soul

To a parent, worth the cost. Find a way to make it cheaper

This is unconscionable

FDA is full of shit! They should cut their wrists, already!

Hey, anyone who thinks this is okay should drop dead.

Big Pharma always wins

FDA stands for f_ckers die association there is no reason a drug should cost so much other than greed greed and more greed

I wonder if it costs more than 15 dollars a month in Australia

Does this qualify as 'extortion'?

WTF?! So it’s not accessible for 99% of the population

GOP is against abortion, but not saving the lives of babies once they are born. healthcare saveourchildren

Should be FREE!

The FDA is the For Death Administration.

realDonaldTrump fix this shit!

United States Latest News, United States Headlines

Similar News:You can also read news stories similar to this one that we have collected from other news sources.

Gene therapy gets FDA approval -- and a $2 million price tagThe FDA approved a treatment for a genetic disease called spinal muscular atrophy that causes infants' muscles to waste away, potentially killing them before age 2. The price tag? $2.125 million for a one-time treatment. Of course this is in America 😂😂😂😂 Well then, let’s all pray to god to only inflict the rich. CNN Lays Off Almost Entire Division, Surprises Employees As ‘Crazy Rumor’ Comes True
Source: CNN - 🏆 4. / 95 Read more »

U.S. approves $2 million Novartis gene therapy for rare, deadly muscle disorderZURICH/NEW YORK - Swiss drugmaker Novartis won U.S. approval for its gene therap... This should be criminal. Few of these companies as making these diseases to gain money. This is as a Zionist biological scientist to destroy our world. Insurance company: 'denied due to experimental/investigational services. Pt responsibility'
Source: Reuters - 🏆 2. / 97 Read more »

Novartis $2 million gene therapy for rare disorder is world's most expensive drugSwiss drugmaker Novartis won U.S. approval for its gene therapy Zolgensma for spinal muscular atrophy (SMA) and priced the one-time treatment at a record $2.125 million Sounds like a loving great investment to me That is poorly written Crook Pharma
Source: Reuters - 🏆 2. / 97 Read more »

Geoffrey Rush awarded $2 million in Sydney defamation caseOscar-winning actor Geoffrey Rush awarded $2 million in defamation case over reports he had been accused of inappropriate behavior toward an actress. So he is a sexual predator but the newspaper persons were mean to him. Finally, a man who wasn't a total pig. Rush was great in that Marquis De Sade movie. Welcome back to Disney! That’s a lot of Booty! Pun intended. 😜
Source: ABC - 🏆 471. / 51 Read more »

This $2 app changed the way I work.NBCNewsBETTER: With the Pomodoro Technique, you pick a task, set a timer for 25 minutes to work on that one thing, take a 5-minute break when the timer rings and repeat. BETTER great news story nbc! BETTER .BETTER: With the Kama Sutra Technique, you pick a position, set a timer for 25 minutes to work on that one thing, take a 5-minute break when the timer rings and repeat. BETTER Remind me why I’m paying to use this app?
Source: NBCNews - 🏆 10. / 86 Read more »

Monsanto faces thousands of Roundup-cancer lawsuits after $2 billion verdict“We’re not suing them for the fact that their product causes cancer. We’re suing them because they didn’t tell people that it causes cancer.” PhilMcCausland Good. PhilMcCausland And yet it is still advertised on most networks and sold in most home & garden stores PhilMcCausland Thousands will soon become millions
Source: NBCNews - 🏆 10. / 86 Read more »

RNC paid $2 million to law firm employing former White House counsel Donald McGahnThe RNC said the payment encompassed two years of work by the law firm Jones Day on a variety of matters. And Hillary and the DNC funneled millions through a law firm that paid for the Steele dossier. Is there a d*cking a point? THAT CHEAP idiot in the WHITE HOUSE wouldn't have paid a DIME !!! Oh well, he's right, he has created a hell of a lot of jobs for LAWYERS !!!😜😜🤪🤪 That’s the name of the game in DC, regardless of political party. Why is WaPo surprised?
Source: washingtonpost - 🏆 95. / 72 Read more »

18 Aussie Cake Stall Snacks Ranked From 'Blegh' To 'Take My $2 Right Now!'Chocolate crackles are better than honey joys and that's a FACT. shannenaux Wtf is a cake stall?
Source: BuzzFeed - 🏆 730. / 51 Read more »

Nascar to buy International Speedway in deal valued at $2 billion, at a 7% premium to original per-share bidInternational Speedway Corp. announced Wednesday a deal to be acquired by Nascar Holdings Inc. in a deal valued at $2.0 billion. Under terms of the deal,...
Source: MarketWatch - 🏆 3. / 97 Read more »

Infrastructure Week dies — again"There wasn’t going to be a $2 trillion deal anyway," Republican Rep. Sam Graves said. Dude. Stop it. Seriously? The ball was in Trump's court, and he apparently sauntered in, shit on the table, and walked out. This is not 'neither party'. ewarren has a plan for that.
Source: politico - 🏆 381. / 59 Read more »