(Re)Conceptualising ‘good’ proxy decision-making for research: the implications for proxy consent decision quality - BMC Medical Ethics

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In a Debate article for BMCMedEthics, VickyLShepherd presents a conceptualisation of ‘good’ proxy decision-making for research participation by adults unable to provide consent.

]. This complexity of multi-attribute decisions and the accompanying moral responsibility experienced by proxies may explain post-traumatic stress symptoms being found in 35% of family members of critically ill patients making decisions about research, compared with less than 10% in those involved in decisions about clinical care [].

At a conceptual level, the primary indicator of proxy decision quality should not be limited to the knowledge and understanding of the decision-maker. Rather, a broader context needs to be considered, including important dimensions of satisfaction, confidence, values-choice congruence, and preferences related to both the decision-making process and outcome of the decision. It is not clear whether a decision can be considered good if elements contained within it conflict and if so for whom.

Source: Healthcare Press (healthcarepress.net)

 

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