‘We thought we could deal with whatever’s thrown at us,’ remembers Jodie, 33. ‘But then, when we heard a doctor say the words “life-limiting”, we had the rug pulled out from under us.’
A few days later, doctors discovered that Margot had been born with a severe condition, and broke the news to the new parents. ‘We did have frank medical meetings where we were told: “Your daughter’s not going to smile, she’s not going to crawl, she won’t feed”,’ recalls Jodie.The couple had to learn how to feed her alone, were assigned hospice support, and Margot was gently weaned off of the machines that she’d be without while in the family home.
‘That felt like a difficult battle because while we wanted everyone to meet her, we felt like we want to enjoy her ourselves.’
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