My 'butterfly skin' could kill me

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My 'butterfly skin' could kill me but I want to raise awareness for others

Lucy, who is originally from Austin, Texas, is currently studying at St Andrews University in Scotland. She says her EB was first diagnosed when she was born without skin in some places on her body.

But far from allowing her condition to define her life in a negative way, Lucy has taken the opposite approach. She attributes her drive to the fact that her condition led to her missing school as a child."I loved school. I was that weird kid. I'd get so upset that I had to miss out on learning," she says.Lucy Beal Lott

 

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The rash is not very big. She is still pretty.

Brave lady 💕

Lucy’s instagram is

I've had several friends with EB despite having my own disability which causes severe pain I always admired their fortitude and zest for life

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