Nicola Grantham, 34, and joiner dad Leon Townsend, 38, couldn’t believe their eyes as their five-year-old son Lennon’s skin ‘stated to slide off’.
Then, after he was born, he had trouble emptying his bowels, his development was delayed and his muscles were weak. ‘But before this happened, he was sitting up unaided and was able to use a walking frame. He was making such good progress that we were really hopeful that he would soon be walking.’Lennon before the SJS and TENs started
Then, when his parents tried to lift him from his bed that day, they noticed something was seriously wrong. They rushed him to Blackburn Hospital, medics thought he might have scalded skin syndrome, a painful blistering skin condition. Nicola recalled: ‘He has had lots of operations in his short life, because of his bowel problems, so all we could do was be positive and think how much he’d fought and got through before.‘By Monday he seemed a little bit better and by Tuesday a bit more and the following weekend he was taken off the ventilator.
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