Livvy Haydock: 'Disabled gangsters supported me with my MS diagnosis'

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'How gangsters became my unlikely support group'

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It was her love of American rap music as a teenager that formed her fascination with the criminal underground, gangs and violence. Livvy finished her film and returned to the UK, but the symptoms persisted. Over the next four years she made several trips to the doctor but never got a diagnosis. In 2020 it was suggested she undergo a lumbar puncture - a test of her spinal fluid - to "rule out MS". But the result confirmed the very opposite.

But by Christmas, "the grenade exploded", and a minor family disagreement turned into "something out of EastEnders".And Claire, a wheelchair-user, reveals she has been waiting for her social housing property to be adapted for more than three years, despite the council signing off the work in 2019. "I come across lots of disability within the world of crime," she says. "At one point the majority of the gang members I interviewed were either in wheelchairs or had ongoing medical issues from gunshot wounds."

Another of her favourite contacts to talk to about life with a disability is a reformed gang member based in the US. At the height of his notoriety he ran 30 drug-houses in Dallas. Then his gang turned on him. Her treatment involves an infusion every six weeks to help reduce the amount of damage and scarring to the myelin sheath.

 

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