Family of teenager who died after over a year in hospital told to pay back £8,000 in overpaid benefits

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Sudiksha Thirumalesh's parents say they were forced to give up work to be at her bedside and faced a legal battle to stop the hospital moving the 19-year-old into palliative care.

The family of a teenager who died after spending over a year in hospital have been told they owe the government over £8,000 in overpaid benefits. Sudiksha Thirumalesh had an extremely rare mitochondrial disorder and was hospitalised after contracting COVID. Her parents say they were forced to give up work to be by her bedside while she was in hospital. Sudiksha's family were also involved in a legal battle over her care.

10 in overpaid carer's allowance because they had alerted the department too late that Sudhiksha was being cared for in hospital. Her parents say they were still caring for her day in, day out, even though she was no longer at home. They say the debt is a 'huge hardship' for them after they gave up work and paid out tens of thousands in legal fees when Sudiksha's case went to the court of protection.

 

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