– he might not be able to do much – the condition affects everything including his brain – but I can help him dream by reading to him.‘The books really don’t take long to write, a few days at most and I always like to use words that Jackson is familiar with.
‘I’ve so far written 10 ‘Jackson Superhero’ stories, with the next one, ‘Jackson’s solution to the world’s pollution,’ due out in May 2019. Jackson’s condition has caused his nervous system to degenerate and symptoms include irritability, choking, seizures along with loss of developmental and motor skills.Born in August 2014, Jackson developed normally until he reached nine months when he stopped hitting his milestones and lost the ability to complete previously learnt skills – such as being able to feed himself and picking up his dummy.
Since the diagnosis, Jackson’s mum, Rebecca Garwood, a recruitment agent, has only been able to work one day a week – but Jackson has defied expectations, as he now approaches his fifth birthday.The family – who have since welcomed two-year-old daughter Seren – now take each day as it comes.Darren added: ‘Doctors no longer know how long Jackson has got to live.
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