Parents have pleaded with health chiefs to provide a groundbreaking new drug which gives youngsters suffering a rare and fatal childhood illness a chance to live. But they have been left to watch their children deteriorate as the NHS will not pay for the treatment for late infantile Batten disease - a form of dementia. Enzyme therapy Brineura dramatically slows the condition which robs children of sight and speech, as well as the ability to walk, talk and even swallow.
Source: Healthcare Press (healthcarepress.net)
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