Baby joy and engagement for couple whose daughter died in her mummy's arms

For Lanarkshire dad Jamie McMillan, there could be no more meaningful place at which to propose to the mum of his three children than by the graveside of their middle child, with their new-born baby and her big sister by their side.

“I saw the writing,” said Ainslidh. “I turned round, and Jamie was on one knee. I didn’t see it coming. Olivia understood what he had done. She said: ‘That means you’re going to get married.’” “I held Amelia and cried the whole day,” said Ainslidh, of St Leonards, East Kilbride. “Our whole world had been ripped apart in such a short space of time.

“So, when CHAS was mentioned again, we said yes and, in July 2022, we went for a visit to Robin House. Those few days in Robin House gave Ainslidh and Jamie time and space to simply be Amelia’s parents, and not her carers. “They asked us where we would like Amelia to die. We’d always said we wanted her to be at home but, in that moment, we just knew we should go to Robin House.”

Staff at Robin House helped the family navigate the days following Amelia’s death, and arranged for her parents to take part in memory-making, and casts of Amelia’s hands and feet were made. “It might sound silly because I knew she was gone, but it was so important for me to know that she was still being looked after and cared for.”

Within a week, results revealed that like her parents and sister Olivia, Aria is a carrier of the faulty gene but will not go on to develop the rare disorder that claimed Amelia’s life. Now with a thriving month-old baby and a wedding to plan, Ainslidh and Jamie were humbled to be asked to front CHAS’s new fundraising campaign, ‘Every Single Step’ – an appeal that illustrates how families are supported at every single stage of a child’s palliative care journey.

The Unwavering Care 2024-2028 Strategy was developed following in-depth consultation and feedback from more than 135 families and from stakeholders.

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