Community Heroes : How I live with an autoimmune disease and help fellow patients find support and form friendships
The constant intake of several medications came with a host of side effects including heart palpitations, nausea, hair loss, weight gain and digestive issues — all of which made life a struggle. My condition made things worse. I did not graduate and switched to a bachelor of business degree course at the Australia-based RMIT University in 2003, graduating only in 2006.
Determined to connect with others facing similar situations, I organised a Singapore-based contact group in 2013. My first meeting was with two fellow patients, face to face, and it was a turning point: There was finally a space for open conversation and shared experiences. Today, we have more than 300 members. We meet once every two or three months, both in-person and online.
Looking forward, our long-term goal is to advocate for greater awareness of autoimmune diseases, even if they are less prevalent in Singapore. We hope to contribute to healthcare policies that consider the specific needs of those living with these conditions.
Source: Healthcare Press (healthcarepress.net)
Rare Disease Autoimmune Disorder
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