RM9mil needed to save 17-month-old girl from permanent paralysis

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Rachel Chung and her husband said their youngest child had been suffering from SMA since she was 14 months old.

The parents of Reese Tan Rui Xin are trying their best to raise RM9mil for a single dose of a jab that holds the promise of being able to treat their daughter’s severe and rare genetic disorder.

"She also has breathing difficulties, is unable to chew food and sometimes requires respiratory assistance. She is at risk of losing her life if she is not treated swiftly," said Chung at the One Hope Charity and Welfare office on Tuesday . "For now, we can only bear the costs of medical check-ups and regular treatment. We are in a predicament. We hope the public can help our daughter get this life-saving jab,” she said.

The main symptoms of patients are muscle atrophy and weakness all over the body, and the body will gradually lose various motor functions, resulting in breathing and swallowing difficulties and death.

Source: Healthcare Press (healthcarepress.net)

 

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