Co-founder of viral ALS Ice Bucket Challenge dies at 37

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He shed light on something that was not well-known, a hero in his own right.

Pat Quinn was diagnosed with Lou Gehrig’s disease, also known as amyotrophic lateral sclerosis, in 2013, a month after his 30th birthday, the organisation said in a statement announcing his death.

In 2014, Quinn saw the ice bucket challenge on the social media feed of professional golfer Chris Kennedy, who first dared his wife’s cousin Jeanette Senerchia to take a bucket of ice water, dump it over her head, post a video on social media and ask others to do the same or to make a donation to charity. Senerchia’s husband had ALS.

When the two picked it up, the phenomenon exploded, the organisation said. Thousands of people participated in the viral trend, including celebrities, sports stars and politicians – even Donald Trump before his election and cartoon character Homer Simpson. Online videos were viewed millions of times.

Lou Gehrig’s disease, named after the New York Yankees great who suffered from it – is also known as ALS or motor neuron disease. It is a progressive neurodegenerative disease that leads to paralysis due to the death of motor neurons in the spinal cord and brain. There is no known cure.

 

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RIP Patrick Quinn..co-founder Ice Bucket Challenge for fight ALS. Sharmine be strong 💪💪 fight MNDs

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