‘Running into roadblocks’: N.B. family fights to get care for daughter with epilepsy

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A New Brunswick family is struggling to get health care for their young daughter with epilepsy. They're now raising money to get treatment outside the province.

A four-year-old girl in New Brunswick has been enduring about 100 seizures a day for almost a year. Despite the severity of her condition, her parents say the province’s health-care system lacks the resources to help. Suzanne Lapointe reports.

Charlotte, also known as Charlie, first started having seizures when she was eight to 10 months old, but they’ve gotten worse in recent months.The Moncton, N.B., family is raising money to seek treatment for their daughter in Toronto, as the provincial health-care system has so far failed to find a remedy that works.

“Watching her friends do all the things she wants to do is breaking her heart,” Holloran said, tearing up. “She tells me, cries, ‘Why don’t my legs work?’ … It breaks your heart. I wish I had the answers.”“I can tell it bothers him, especially the amount of times we’re in the hospital for extended periods of time,” said Holloran. “He misses his sister.

“We go to the hospital, and we leave in worse condition than when we arrive, and they still discharge us,” said Grant, Charlotte’s father.Earlier this month, the family traveled to Toronto to visit relatives. Charlotte had a flare-up, and they brought her to The Hospital for Sick Children, also known as SickKids.

 

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