We failed Australians with chronic fatigue. Will we do the same with long COVID?

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Analysis: We failed Australians with chronic fatigue. Will we do the same with long COVID? | liammannix

, a free weekly newsletter covering science with a sceptical, evidence-based eye, is sent every Tuesday. Below is an excerpt –We failed the many thousands of Australians with chronic fatigue syndrome. We did not invest enough in research. We did not build an effective care system. We did not believe them.

Myalgic encephalomyelitis or chronic fatigue is often characterised by overwhelming fatigue and post-exertion exhaustion. Years of underfunding of research has left us without a biomarker to help identify the disease. That has allowed many to go on believing that ME/CFS is not real – that it’s psychosomatic, imagined by someone who, for reasons unclear, wishes to ruin their life.

Josh Van Dijk and Ricky Buchanan in Buchanan’s Balaclava home. Ricky is bedridden and must stay in a hospital bed all day.People with long COVID find it extremely difficult to get treatment and to get taken seriously – in part due to widespread scepticism and disbelief from GPs. That’s old news to people with ME/CFS, a disease that was first characterised asMandy* was starting her career as a teacher and had just become engaged when she was hit with glandular fever.

 

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liammannix Please fix the headline and copy to use the correct terminology in reference to the subject matter. This misnomer is why people get more confused. (Click to expand the quote tweet fully). But otherwise, keep writing on important topics like this, Liam.

liammannix Agree but we have no money buddy. Would be nice if we don't live in resource scarcity world. We have money printed and blown our budget with the COVID response. We and future generation are and will be paying for it both in inflation and higher interest repayment.

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