He struggled through school, feared he wouldn't have coped at university, and lives with a genetic condition, but somehow Will Golding has used his disability to create his dream career.The 25-year-old was paying a support worker through the National Disability Insurance Scheme for years to help him become more social.
"Some of them were 18, some of them were just about to turn 18, and a lot of them weren't really qualified at all," he said.It's commonly misdiagnosed as autism because it has similar symptoms, like language difficulty and behavioural problems. "We have a client here who was gaming about 13, 14 hours a day straight to the point where his muscles actually atrophied, and he was going to a physiotherapist," Will said.
"They can understand if someone's frustrated, they can understand if someone's sad, they can understand that someone's happy because they can see their facial expressions from that," he said. "We were finding that the workers coming to help him were unqualified, very young, didn't really know much about autism or mental health and didn't really understand how the NDIS worked."
Dr Topping is calling for the NDIS to take seriously people with lived experience, and for the disability community to be more involved in decisions about their own care.
Canberra Local Stories Will Golding Claire Golding Dr Megan Topping Autism Nurodiversity NDIS Service Providers Support Disability Video Games Gaming Nuerodiverse XXY Syndrome Klinefelter Syndrome Ignition Gamers
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