Given a life expectancy of just five years, the world's youngest wheelchair rugby coach is defying the odds

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Beau Cosgrove, 11, lives with a rare, life-threatening condition but that has not stopped him from living life to the fullest: as a bull riding, rodeo-rocking, wheelchair rugby coach.

He's a bull rider, thrillseeker and the world's youngest wheelchair rugby coach — and that is despite being given a life expectancy of just five years.

His medical care includes a lifesaving drug that, without government support, would end up costing the family $400,000.He and his family try to be positive."We've got so many opportunities and have had so many amazing experiences that would never have happened if he didn't have his condition," his mother, Sam Cosgrove, said.

His passion around bull riding is infectious, too, so it's not surprising to hear what he wants to do when he grows up. "We've got people [who] we're lucky we're surrounded by, because they will make it work for him," Sam said.It has been a challenging ride for Beau — every surgery, new drug or procedure can put his life at risk.

Beau's love of wheelchair rugby led to a recent opportunity to act as the assistant coach for the Sydney University wheelchair rugby team, where he was heralded as the world's youngest coach in the sport. The organisation met Beau on a trip to Goulburn. Chief executive Mick Garnett was captivated by the 11-year-old's story and saw an opportunity to get him involved.

 

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