For parents already living grief, NDIS cuts feel like our kids are being punished for incompetent leadership | Kim Berry

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The NDIA has forgotten its purpose to serve the most vulnerable, and it leaves families with an impossible choice

‘My son Oscar is the brightest, warmest orb of human light to walk the earth. He brings joy wherever he goes.’

Oscar has a rare genetic disorder – a partial duplication on chromosome 4. The impact of that has been significant, with a moderate intellectual disability topping the list. He has a profound speech disability, epilepsy, other physical and emotional issues that cause ongoing chronic health concerns, and cerebral palsy. He’s quite the package.

When his plan was coming up for renewal in early December last year, we wanted very little to change apart from some extra funding for more overnight respite as we ramp up plans for him to move into a supported living house with some friends. Instead of additional funds for overnight respite, we have found out all of his respite funding has been cut. Funding we had to develop skills to move out of home, cut, because we didn’t use it. No acknowledgement or allowance for unspent funds due to a global pandemic bringing everything either to a complete stop or a glacial pace at best.

What sort of civilised society leaves behind the people who need help the most? Or worse, makes them beg.

 

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If the libs had kept the MRRT, NDIS would of been fully funded and probably dental.

The NDIS is ill-conceived, fraught with rorts and extremely inefficient. As Government comes to term with costs, the least empowered will suffer. The NDIS is a boon for anyone lawyered up and for private care providers. The whole sector needs to be public, planned and coordinated

Average funding for significantly disabled people is $68k. This is more than many working people make and takes several tax payers to pay for 1 participant. To suggest that we don't care about disabled people is clearly untrue.

Blimey. Knowing mulltiple NDIS recipients, their experiences mixed. Horrible to say this but more positive comments generally come from those with spinal/ limb injuries whilst negative come from families of brain injury clients.

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