Australia’s life-saving bone marrow registry needs $13m. Why is red tape holding it up?

Jack Stevens, who died of a rare form of leukaemia, with parents Louise and Gary Stevens, who provided this photo. The Australian Bone Marrow Donor Registry is calling for the release of funding to raise awareness and boost donor numbers

Every day since 18 November 2021, when Jack lost his battle against a rare form of leukaemia, Stevens has lived There are only 140,000 donors on the Australian register, and that number is declining as donors are retired at the age of 60, withThere are only 50,000 donors within the clinically preferred age range of 18-35, as Smith says, “the younger the donor is the better the outcome for the patient”.The registry has $13m it wants to use to expand potential donors through a campaign raising awareness that it only takes a painless cheek swab to join the registry.

The jurisdictional committee for the blood stem cell sector received advice from PwC as well as a clinical advisory group regarding whether and how that money should be released, but has not released those reports despite freedom of information requests which were lodged by the former senator Rex Patrick on behalf of the independent MP Dr Monique Ryan.

“This decision is very disappointing. I urge the government to release the report and fund the bone marrow registry so we can get on with saving lives,” Ryan says.and Aged Care says the revenue is available to fund all blood stem cell sector activities “including but not limited to HPC donor recruitment but … any decision on the use of funds must be made jointly by all governments”.

“If you are Indigenous, you can’t find a match overseas, and your only hope is to find a match within Australia,” Smith says., Mark Butler, on 7 February this year, suggesting cheek-swab programs could be introduced within universities, the military and the public service with a donor age up to 40.

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