Years after a rare brain infection almost killed me, my medical mystery is saving lives

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Years after a rare brain infection almost killed me, my medical mystery is saving lives
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“Brain on Fire” author Susannah Cahalan shared her “month of madness” on TODAY nearly 13 years ago. In a personal essay, she writes about what’s happened since.

I appeared on TODAY 10 months after I learned how to speak again. It was January 2010, a few weeks before my 25th birthday. Even today, looking back, I can still feel the prickly sensation akin to dread located in the pit of my stomach. I remember the bright lights of the studio and stifling the urge to laugh when I heard my name on the prerecorded segment about “one woman’s month of madness.

The recovering version of me — the young woman who looked so fragile, still broken — surprised me with the strength of her response: “Well, I think that there are so many people out there — who knows how many people out there —who are suffering from what I suffered from and are just not getting the diagnosis that they need.”In the days that followed, I received hundreds of emails.

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