The Stories Behind: TikToker hopes others with alopecia feel 'less alone' as she shares lows, laughs of hair loss condition

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The Stories Behind News

Alopecia,Tiktok

SINGAPORE — As I prepared to meet 28-year-old Adeline Tay for an interview on her TikTok fame and her journey as an “alopecian”, I found myself mulling over how to be delicate when approaching the subject of her hair loss.

The Stories Behind : TikToker hopes others with alopecia feel 'less alone' as she shares lows, laughs of hair loss condition

Using humour and vulnerability on her platform as she shares everyday adult life, she hopes it helps others feel"less alone'' One of her most popular TikTok videos showed her colleagues joining her to wear bucket hats as a show of support during an alopecia relapse. Despite describing herself as “pretty awkward” offline, as I sat across from Ms Tay for over an hour, my initial wariness of broaching supposedly sensitive subjects dissipated.

Almost as if she was comforting me rather than being interviewed by me, much as she does online, she said: “I want to reach people who are trying their best everyday to figure out life. True to her aims to keep things light, she initially joked in reply that her hair loss was because she ate too much instant noodles or because of academic stress.Ms Tay now has a series of over 30 videos called “All about Alopecia”, where she has shared on how she copes with hair loss and has fielded questions such as: Are you a boy or a girl?

“I didn’t have eyebrows then, but I had a white board marker at home, so I tried drawing my eyebrows with a whiteboard marker. I found it pretty funny, and saw my parents laughing, and I thought: 'Why not? Just learn to find joy in it'.”Yet even as Ms Tay’s humour shone through, it did not take long before our conversation treaded into personal matters closer to her heart.

“When I go through a relapse, it’s not just myself, it’s the people around me who go through it emotionally too. I’m afraid of getting people’s hopes up and disappointing them again.” She added that there is no formulaic approach to what she does, just a wish to"document life" as an adult doing her best.

She recalled realising the “very real” impact her videos had when a cancer patient tagged her in a video, stating that she had been inspired to shave her hair off because she had seen Ms Tay openly discussing her hair loss.

Alopecia Tiktok

 

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