Penny Parkin, 69, who was exposed to COVID-19 on March 23, 2020, takes her daily afternoon nap while her husband, John Parkin, 85, reads the newspaper, in Doylestown, Pennsylvania, U.S., March 17, 2021. When I tell my husband that I’m really tired he says to stop what you’re doing and just lie down.” said Parkin as she continues to suffer from long term effects of the coronavirus disease.
Scientists are only beginning to study any potential effect of vaccines on long COVID symptoms. Anecdotes run the gamut: Besides those who report feeling better after the shots, many people say they have experienced no change, and a small number say they feel worse. Additional information comes from two surveys of several hundred people with long COVID symptoms, many of whom were never hospitalized for the disease.
Jim Golen, 55, of Saginaw, Minnesota, feels some long COVID symptoms have worsened since his vaccination. Golen, a former hospice nurse who also has a small farm, had experienced months of difficulty, including blood clots in his lungs, chest pain, brain fog, insomnia and shortness of breath with any exertion. Late last year, after seeing several doctors, “I was finally starting to get better,” he said.
Scientists say that understanding whether vaccines help some long COVID patients but not others could help unravel the underlying causes of different symptoms and potential ways to treat them. Iwasaki said the vaccine might also help people whose long COVID symptoms may be caused by a post-viral response resembling an autoimmune disease if “the vaccine stimulates innate immune responses that dampen these kinds of autoreactive responses,” she said. But based on experiences of people with other autoimmune diseases, that relief would “not be very long-lasting, and they would kind of revert back” to having symptoms like fatigue, she said.
He added, “I think there’s probably something there, but I just don’t know what is the magnitude, how many people are going to benefit.” “It was horrifying,” she said. “It was awful thinking it may never get better, like, ‘Is this my new normal? Am I now damaged this way?’”
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