in the news magazine The Atlantic.
We would be having conversations that went beyond the mere form of the article to its crux — conversations that would be difficult, conversations I thought hard about how to facilitate in a nuanced and responsible way. Those with more severe forms of Down syndrome might spend years in and out of the hospital for repeated valvular heart surgeries, or be placed on permanent stoma bags to relieve their gastrointestinal problems.
Recalling my own childhood, there was a pair of twins with dwarfism, also known as achondroplasia, in my primary school. No one gave the twins leeway in the chase and they were often caught, but neither did anyone go after them just because they were “easy targets”. The first few times it happened, the teacher tried to get him to return to his seat, but eventually, she decided to let him be. He was a sweet boy otherwise, causing minimal disruption to the class.
Through the article, I was given a glimpse into the inner conflict of parents dealing with a verdict of Down syndrome.
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