Endometriosis sufferer had period pain so bad, she attempted suicide twice: why the disease is often misdiagnosed

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HONG KONG — Not every woman remembers her first period, but 36-year-old Namira Binte Mohamad Marsudi cannot forget hers. At age of 11, the initial sharp pain gave way to several days of throbbing cramps, which the Singaporean was told were “normal”.

“As I got older, the cramps worsened,” Ms Namira says. “During every period, I experienced bloating, nausea, backaches, a prickling sensation in my legs and . When I was 26, I noticed that the pain had spread to my bowel. On two occasions, it got so bad that I almost passed out.”

Not long afterwards, she went to a public hospital known for its female reproductive care where she was prescribed hormonal and contraceptive medications and painkillers. This led to a short stay at Singapore’s Institute of Mental Health, during which Ms Namira came across Nancy’s Nook Endometriosis Education, a Facebook support group for endometriosis sufferers. Through this group, she found a doctor in Singapore who specialised in the disease.

“If endometriosis develops within an ovary, the blood accumulates and forms an endometriotic cyst called a chocolate cyst. Adenomyosis can cause the uterus to become large with painful and heavy periods.

Some cases of pelvic endometriosis are also hard to identify without performing a laparoscopy to look inside the abdomen. The gynaecologist may instead prescribe hormonal treatment if the symptoms are suggestive of endometriosis; a positive response to the treatment can help confirm the diagnosis. Not all women with endometriosis have fertility issues. Often, doctors diagnose endometriosis when a woman has her first ultrasound during her pregnancy, says Dr Tsui. And whether endometriosis impacts a woman’s fertility depends on its location and the extent of the scarring.

Source: Healthcare Press (healthcarepress.net)

 

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