Commentary: Having a rare disease has helped me to be super in my own way, even without superpowers

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I always wanted superpowers. I still do, if I’m being totally honest.

Wouldn’t it be amazing to teleport instead of having to wake up early; fly high in the skies whenever I had to get away from my troubles; or be really strong so I can live a life of reckless abandon.

There were many times where all I could do was lie on the hospital bed and stare, grinding my teeth ever so often, desperately thinking that the grating would grab someone, anyone’s attention so he/she could help me with that irritating itch. I was bitter and upset because life seemed to have me on a target, trampling on my childhood while everyone carried on with theirs.If only life was a video game, then all these negative emotions could disappear with the push of a button. I was often disgusted at myself for being so different, so weak, so useless...With the power to restart, I would never have grown from my time in the hospital, or any experience for that matter.

My weaknesses are precisely the reason I see value in my pursuits because in seeking personal improvement, the struggles themselves become meaningful. Sonder, the profound feeling that everyone leads lives that are equally intricate and complex as your own, is a word I feel a deep connection to.

 

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