Xu Wei was just a father trying to make ends meet and raise his newborn son as a small business owner selling electrical sockets online.
“We brought him to see a doctor because of his slow development,” Xu said. “He had the sample taken in February to have a full genetic test and got the result in May. I felt devastated but I couldn‘t give up. How could one give up his own child?” Because the disease results from a disorder in the X chromosome, it is almost universally found in males because females have another X chromosome that can provide a safety net if the disease manifests.According to the US National Institute of Health , people with the disease usually die at a very young age, rarely living past 10 years old.
Undaunted, he began to study, reading American research papers to teach himself how to produce copper histidine. Xu signed an agreement with a company at an industrial plant, which made the drug based on instructions from the research, proving to Xu that the medicine could be made. But Xu said the agreement was too expensive for the long term and he decided to make the drugs at his own home with 20,000 yuan worth of equipment.
Zhu said it is common for people to use homemade remedies to treat loved ones, and Xu should avoid legal problems because he does not appear to have harmed anyone.
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