Making progress despite sickle cell: My story

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I know since the beginning of the year I’ve been sharing stories of people living with sickle cell that would make any parent who has a child or children living with sickle cell despair.

In 2021, I embarked on a one-year master’s course. It was highly stressful. I hadn’t been in a higher institution in nearly three decades. Things had changed so much from when I did my initial MA. Most things were accessed online, and I opted to do my course online due to sickle cell. This time around, from the onset, I informed the university that I was living with sickle cell, and I would need help, so it was all about full disclosure.

Those who know about sickle cell know that sickle cell does not like stress. Typically, or shall I say, unfortunately, I started having one crisis after another at the beginning of the second term. I had sickle cell crises, pneumonia, and acute chest syndrome. I was in such a bad way that I thought I was going to die. Due to the behaviour that I had received in hospital over the years, whenever I have a crisis, hospital will always be my last choice.

I did eventually have to go to a hospital, and I was admitted. My haematology consultant was extremely concerned and worried about me. I wasn’t that worried about myself because what I had been through at home was worse and here, I was presenting myself to the hospital at the tail end of it all. Of course, after doing x-rays, they saw the tell-tale signs of all the different things that had happened.

Sickle cell has a way of rearing its ugly head when one is about to do something important. My small advice is, don’t let it stop you from moving forward and achieving your goal. It can only be a temporary setback. You can always go on and start again like I did, decades later. I hope this personal account of a time in my life well not only encourage you but equally motivate you to keep on forging ahead sickle cell or not.

 

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Hello Tola, i feel your pulse.

U are a strong woman. God bless you and strengthen u.

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