The 108-year-old Ipoh Town Hall in Perak's capital is set to become a performing arts centre by early next year
KOTA KINABALU: New drugs and treatment for Duchenne muscular dystrophy from the United States and Europe should be made accessible to patients in Malaysia, says advocate Catherine Jayasuriya.
“We need to include everyone. We must work to remove barriers. If we work together as a coalition we will find solutions,” she said. “When my son was diagnosed with DMD in 1997, it felt that there was not much hope. I had never heard of it before, there was not much awareness or funding of research. There were no clinical trials and we wanted to change that,” she said.
On the Duchenne without Borders mission, Jayasuriya said this came following a meeting with a boy named Azmi whom they met in 2012 here.
Duchenne Muscular Dystrophy DMD Coalition Duchenne Fund-Raiser Help Sabah
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